Miss Us?

Dear Blog Readers,
There have been some requests for more blog entries and more pictures, and I would be happy to oblige. One small tecncal difficulty I have been having doing this is having a computer with internet access. We have been very fortunate that until now, my sister Tamar has been my "ghost writer" posting pics and updates. We are grateful for the time she carved out of her very busy schedule, and dedication to making this blog aestethically readable :).
The Landon Family has been preoccupied with trying to make "the most out of the time we have together." In today's age of the dangers of "distracted parenting," I'm sure you'll understand why we've chosen not to have internet access in the home (yes, the fact that our children are becoming computer literate did contribute to our decision as well).
Soooo, in the meantime, I have gotten a "handheld device" as our main phone, that also has email capabilities, and I have been trying to upload posts from time to time to Facebook. If you would like to follow us there, please send a "friend request" to Miriam Landon on the Facebook Website. I thought I would be able to upload to this blog instead, but it is proving to be too difficult to do with any frquency. Right now, the only reason I can post this, is because I am using the hospital computer lab.
Menschi is undergoing his last scan of the week (MRI of the Chest/Abdomen), and I thank you for your continued thoughts and prayers. I do not know where we'd be without all of you, and it makes the isolation of this experience that much more bearable, so thank you, thank you thank you.
Amazingly enough, this entire week at Egleston (our original hospital we started at) was an ENTIRELY NEW experience for Menachem Shalom. He didn't remember the hospital, the staff, nothing at all seemed familiar --- you see, there is an upside to forgetting!!!! He is certainly a trooper, I will not deny it, but it was so great to "show him off" to all the people who were involved in his care when his very life was so tenuous. Tears and Inspiration abound; Hodu L'Hashem Ki Tov Ki L'olam Chasdo!!! (Thanks to HaShem's Goodness, His Kindness is Eternal!)
Miriam
(I can be contacted "offline" at shmuelandmiriam@gmail.com)

Scans Next Week

PLEASE KEEP MENSCHI IN YOUR PRAYERS
SCANS NEXT WEEK  JUNE 21-25 (IN ATLANTA)


LET'S DAVEN THAT 
MENACHEM SHALOM BEN MIRIAM 
REMAINS N.E.D (NO EVIDENCE OF DISEASE)

HAMA still high but don't sigh

Menschi's recent bloodwork has shown that his antigen reaction to the "mouse counterpart" of his antibody treatment (aka HAMA) is still high, so we will not be going up to NY this week. While a "high HAMA" may preclude him presently from important preventative and potentially curative treatment, our understanding is that the levels reflect an immune system that is strong enough to give such a significant antigen reaction. Double-sword, I guess, but ultimately, with the awareness of "Who is really keeping Menschi well," the stress over whether or not he will ultimately get this treatment is not there. Who am I to limit G-d to only healing him through this matter, right?

Thank you again for everyone's spiritual efforts for not just Menschi but on behalf of my entire family's well-being. We continue to be in awe of you and the immeasurable power of your tefillos!!!

On the horizon this month: routine scans, audiological testing, eye exam, and blood work at the end to see if HAMA has gone down; "Extended School Year" application process for summer services to continue audio-verbal therapy through the school system; Menschi is also going for current re-evaluation of his needs for Occupational and Physical Therapy (since I put those concerns on the back burner for a while); Also, Menschi's speech therapist is tremendously pleased with his progress! Along with physical growth in stature he has become a lot more expressive and just cognizant of connections around him --- Chasdei H-Shem!!

Feel "Free" to Sign Up

Hope everyone had a liberating Pesach. Please feel "free" to sign up for the next round of tehillim for Menschi:
You can either sign up on the spreadsheet link http://spreadsheets.google.com/ccc?key=0AmmNgxmn3b90dE1KX1p4UjJlMzVPNW9QZ0RncVhMZkE&hl=en

or by email menachemtehillim@yahoo.com


The following perakim are available:  
All Have Been Assigned


Thank you to everyone who signed up.
Tizku L'Mitzvos

Jury Duty Over- Park Time

Didn't know what the day would bring in terms of jury duty service or HAMA results. What we DID know though, was that the weather was beautiful and just right for the PARK!!

Later on we discovered mommy would not have to report for duty in court tomorrow and Menschi will not have to report for duty in NY for at least the next month (HAMA levels are "high" --- no 3F8 for now)

Tehillim Torchbearers

The following kapitlach need coverage:
 None- All Have Been Assigned

It is the Tehillim Torchbearers that illuminate the path for us.

Itmay seem like Menschi is out of the woods (Menschi is N.E.D. - a cautious term for remission) but just recently he had a test result that indicated possible recurrence.Thank Gd it turned out to be a false positive but reminded us that it is only through constant Rachmei Shamayim that Menschi is still with us.

We are looking for long-term Tehillim sayers to ease the burden of coordinating the tehillim each month.  If you are saying Tehillim for other cholim on a consistent basis and would just like to add his name that is fine.

If you can sign up until 6/1, please let us know.    If you want to undertake a shorter time period, that would be helpful too but please mark that down next to your name on the spreadsheet or indicate so in your email to me atwarga@gmail.com.  If you have signed up already until 4/7 your name is still on the list.  You can extend the time on your kapitlach by letting me know or logging into the spreadsheet.  

http://spreadsheets.google.com/ccc?key=0AmmNgxmn3b90dE1KX1p4UjJlMzVPNW9QZ0RncVhMZkE&hl=en
THANK YOU AND TIZKU L'MITZVOS!!!!

  

Under Constructionist Jews

For Purim we were all dressed like workmen. Our theme, "Underconstructionist Jews". Afterall, Judaism is all about constantly improving our character traits.  We're works in progress. All the tools we need to have a great life are in our tool belt.